06/2019

RTI International

To develop and test an intervention to address and support the development of infants with a confirmed diagnosis of Fragile X syndrome. Second payment of a four-year, $1,000,000 grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
06/2019

RTI International

To explore establishment of a Virtual Intervention and Support Center for Children with Special Health Care Needs and Their Families.

Developmental Disabilities

Research to Clinical Practice Program

$152,130
03/2019

University of Wisconsin-Madison Waisman Center

To establish high-quality stem cell lines from people with Fragile X for use in future research.  Two-year grant 2019-2020.

Developmental Disabilities

Translational Research Program

$245,000
12/2018

RTI International

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  Second payment of a five-year, $1.25 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
12/2018

University of California, Davis

To mine data from Dr. David Hessl’s original study using computer-based cognitive training for young people with Fragile X syndrome, in order to glean more insight about what factors contribute to improved working memory and executive function in study participants.

Developmental Disabilities

$181,500
10/2018

RTI International

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Third year of a six-year, $2.6 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$400,000
06/2018

RTI International

To develop and test an intervention to address and support the development of infants with a confirmed diagnosis of Fragile X syndrome. First payment of a four-year, $1,000,000 grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
12/2017

RTI International

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  First payment of a five-year, $1.25 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
12/2017

RTI International

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Second year of a six-year, $2.6 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$500,000
09/2017

Stanford University

To support research by Philippe Mourrain, PhD, on “Synaptic System Characterization and Pharmacological Normalization of Fragile X Syndrome.”  Three-year grant 2017-2020.

Developmental Disabilities

Translational Research Program

$750,000