Grant Program Research to Clinical Practice Program

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  Second payment of a five-year, $1.25 million grant.

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Third year of a six-year, $2.6 million grant.

To develop and test an intervention to address and support the development of infants with a confirmed diagnosis of Fragile X syndrome. First payment of a four-year, $1,000,000 grant.

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  First payment of a five-year, $1.25 million grant.

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Second year of a six-year, $2.6 million grant.

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. First year of a six-year, $2.6 million grant.

To continue planning a voluntary newborn screening program in North Carolina and Wisconsin that would offer screening for congenital conditions including Fragile X.

To plan and gather preliminary data to design a statewide Tier 2 voluntary newborn screening study that includes Fragile X syndrome.