RTI International
To explore establishment of a Virtual Intervention and Support Center for Children with Special Health Care Needs and Their Families.
Grant Program Developmental Disabilities
University of Wisconsin-Madison Waisman Center
To establish high-quality stem cell lines from people with Fragile X for use in future research. Two-year grant 2019-2020.
RTI International
To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation. Second payment of a five-year, $1.25 million grant.
University of California, Davis
To mine data from Dr. David Hessl’s original study using computer-based cognitive training for young people with Fragile X syndrome, in order to glean more insight about what factors contribute to improved working memory and executive function in study participants.
RTI International
To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Third year of a six-year, $2.6 million grant.
RTI International
To develop and test an intervention to address and support the development of infants with a confirmed diagnosis of Fragile X syndrome. First payment of a four-year, $1,000,000 grant.
RTI International
To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation. First payment of a five-year, $1.25 million grant.
RTI International
To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Second year of a six-year, $2.6 million grant.
Stanford University
To support research by Philippe Mourrain, PhD, on “Synaptic System Characterization and Pharmacological Normalization of Fragile X Syndrome.” Three-year grant 2017-2020.
RTI International
To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. First year of a six-year, $2.6 million grant.