12/2020

RTI International

To test the feasibility and effectiveness of Zoom recruitment for Early Check newborn screening of Fragile X syndrome; and to investigate and support the integration of early intervention and newborn screening. First payment of a two-year, $979,000 grant.

Developmental Disabilities

Research to Clinical Practice Program

$432,000
12/2020

RTI International

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  Fourth payment of a five-year, $1.25 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
12/2020

RTI International

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Fifth year of a six-year, $2.6 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$400,000
12/2020

Stanford University

To enable Principal Investigator Scott Hall, PhD, to measure the longer-term effectiveness of a targeted twelve-week behavioral intervention for children with Fragile X syndrome.

Developmental Disabilities

Translational Research Program

$198,000
12/2019

RTI International

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  Third payment of a five-year, $1.25 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
12/2019

RTI International

To build the infrastructure for a newborn screening program in North Carolina that includes Fragile X syndrome. Fourth year of a six-year, $2.6 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$400,000
06/2019

RTI International

To develop and test an intervention to address and support the development of infants with a confirmed diagnosis of Fragile X syndrome. Second payment of a four-year, $1,000,000 grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000
06/2019

RTI International

To explore establishment of a Virtual Intervention and Support Center for Children with Special Health Care Needs and Their Families.

Developmental Disabilities

Research to Clinical Practice Program

$152,130
03/2019

University of Wisconsin-Madison Waisman Center

To establish high-quality stem cell lines from people with Fragile X for use in future research.  Two-year grant 2019-2020.

Developmental Disabilities

Translational Research Program

$245,000
12/2018

RTI International

To develop and implement an accessible, multidimensional approach to educating and counseling parents whose infants are identified with a Fragile X premutation.  Second payment of a five-year, $1.25 million grant.

Developmental Disabilities

Research to Clinical Practice Program

$250,000